Resilia is an association born from the desire to inform and support people affected by Lymphoedema, a condition that is both terrible and unknown.
Lymphoedema is a deceitful, chronic and in some senses cowardly condition since it affects you in a totally unexpected way.
When you think that you can go back to leading a normal life, after fighting and winning against cancer, suddenly and unexpectedly suspicious symptoms begin to appear:
- Redness of skin
- Persistent high fever
So you start going round doctors’ consulting rooms and hospitals, and after different inconclusive diagnosis you end up reaching the sad conclusion of being affected by Lymphoedema.
The arm and the hand or the foot and the ankle begin to swell up and become hard to the touch.
You have difficulty using that part of the body which almost feels like it does not belong to you anymore.
After an initial phase of discouragement, you react in a positive way and realize how lucky you are to be still alive anyway. You can still enjoy the affection of your loved ones, you can be much better informed and take all the necessary treatments.
Resilia sets an ambitious and difficult goal, to raise awareness and support Lymphoedema research: on the one hand to support patients affected by this condition along with their family members, and on the other hand to carry out an effective activity of information and prevention.
“IF WE WANT THINGS TO STAY AS THEY ARE, THINGS WILL HAVE TO CHANGE” (TANCREDI)
Life might change, but you will learn to live with your condition and accept it as being a part of you.
The way you dress might have to change, but after all fashions change continuously and you can still be elegant, but in a comfortable way.
The way you manage your day might change: indeed you will be able to dedicate more time to yourself compared with the time needed before to put your make up on or to shave in the morning, as actually many people don’t realise that this condition may affect men as well.
The way you get information for yourself might change: you will sign up for support groups and specialized organizations and you will give special attention to all those scientific researches and discoveries aimed at the daily treatment of your Lymphoedema.
Many things will change, but you will always remain yourself, and that is the most important thing.
And if you are here it means that you are a brave person who wants to overcome this challenge too.